Coeliac Australia Information and support to medically diagnosed Coeliacs and their families, sufferers of Dermatitis Herpetiformis and those medically diagnosed as requiring a gluten free diet.
Coeliac WA Local information for Western Australians Coeliac Sufferers - Contact : 08 9451 9255 Country Callers 1300 GLUTEN (1300 458 836)
Genetic and Rare Disease Network (GaRDN) GaRDN is the peak body for genetic and rare disease support groups in WA and works to empower individuals and their families to reach positive health outcomes. GaRDN inform health professionals and the wider community on the perspectives and experiences of those affected by genetic and rare diseases. GaRDN connect key stakeholders and service providers with people affected by genetic and rare diseases. View FaceBook
me/cfs Society of WA Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), is a complex chronic disease affecting multiple body systems/organs with the potential to cause devastating disability.
Chrysalis - Lyme - CFS is a support group for youth aged 10 to 30 who have Chronic Fatigue Syndrome, Myalgic Encephalomyeltitis and / or Lyme disease, and their parents and carers.
Rare Cancers Australia Ltd (RCA) is a charity whose purpose is to improve awareness, support and treatment of Australians with rare and less common (RLC) cancers. See more information on Thyroid Cancer
Nutrition Australia is a non-government, non-profit, community based-organisation with offices throughout Australia that aims to promote the health and wellbeing of all Australians. See information on Iodine and Healthy High Five for Women
https://www.healthdirect.gov.au/ Healthdirect Australia was established in August 2006 as the National Health Call Centre Network, under a Council of Australian Governments (COAG) agreement to improve access to consistent health information for the people of Australia. The healthdirect helpline, website and mobile app, provide 24/7 access to health information and advice.
https://www.endocrinesociety.org.au/position-statements.asp Endocrine Society of Australia statement on thyroxine preparations available in Australia. For many years, two thyroxine preparations have been marketed in Australia, Oroxine and Eutroxsig (both marketed by Aspen Pharmaceuticals), available in 50, 75, 100 and 200 μg tablets. These preparations are identical, and so it has been immaterial which is dispensed to patients, and brand switching has not been problematic. A new preparation, Eltroxin (also marketed by Aspen) is now available which features a wider range of tablet strengths (25, 50, 75, 100, 125, and 200 μg) and (unlike Oroxine/Eutroxsig) does not require refrigeration. This may allow more accurate daily dosing for patients and may be more convenient.
www.endocrinesurgery.net.au Melbourne based, Mr Bill Flemming FRACS FRCS has a comprehensive and up to date guide to endocrine surgery. Select the THYROID link
The Australasian College of Nutritional and Environmental Medicine (ACNEM) is a non-profit medical college, offering postgraduate training and education for doctors and other graduate healthcare professionals. Nutritional and Environmental Medicine (NEM) is concerned with the interaction of nutritional and environmental factors with human biochemistry and physiology, and the resulting physiological and psychological symptoms and pathology. NEM is evidence-based, drawing on the latest biomedical and genetic science and research to develop new treatment approaches to illness and disease, for primary prevention and to promote optimal health and well-being.
WA Department of Health - HealthyWA - Health Information for Western Australians - The Thyroid Gland
Healthscope Pathology is part of Healthscope Ltd Australia’s largest provider of integrated healthcare. The range of tests investigate functional, biochemical, nutritional, metabolic and hormonal states of health. Note:Healtscope Contact Us indicates WA residents contact Clinipath. These links indicate various Functional Pathology Tests
http://www.thyroiduk.org.uk/tuk/index.html Thyroid UK - Campaigning for and providing Information and Support to those with Thyroid or related disease. It has a great site search facility
www.amend.org.uk AMEND offers support, information and contact with other patients with the following sporadic (non-genetic) or familial (genetic) growths such as: medullary thyroid cancer (MTC) and parathyroid hyperplasia
www.edmcasereports.com Endocrinology, Diabetes & Metabolism Case Reports, is a new online resource that publishes and links together case reports on common and rare conditions in all areas of clinical endocrinology, diabetes and metabolism. This venture is a collaboration between Bioscientifica www.bioscientifica.comand several leading national and international societies around the world; all working together with the aim to further medical education and clinical practice. This is of particular importance in the field which encompasses many rare diseases that are often difficult to conduct clinical studies on. For this reason, case report literature is immeasurably beneficial, both for treatment and education.You can read about the experiences of others living with thyroid conditions and may be able to help other patients living with these disorders by encouraging their doctors to publish their own case reports. As this freely accessible database grows, it further enables practitioners to learn from each others’ experiences.
http://www.thyroidchange.org/ ThyroidChange is a nonprofit patient organization, dedicated to improving the diagnosis and treatment of thyroid disease through a physician-patient cooperative approach.