Thyroid disease affects 1 in 14 Australians. Find out how you can help THYROID WA increase awareness in the community. Get involved. Volunteer!
Volunteers are the mainstay of the support group. Without Volunteer involement and commitment the support group would not function. Contact Us for more information.
IS THERE A CONNECTION BETWEEN THYROID DISEASE AND GLUTEN?
Yes, many thyroid patients have non-coeliac gluten intolerance and some have coeliac disease.
If you suffer from bloating, flatulence, malabsorption, tiredness after eating gluten, constipation or foul smelling fatty stools then it may be wise to ask the doctor for a blood test (antigliadin IgG and coeliac panel). You must be on a normal diet before you do the tests, because the tests become negative once you are on a gluten free diet.
The diagnosis of coeliac disease is confirmed by a positive biopsy obtained through an endoscopy.
Studies have also shown that thyroid antibodies are gluten dependent and decrease on a gluten free diet, but a gluten free diet may not stop thyroid disease from progressing further. However most patients with autoimmune thyroid disease and non-coeliac gluten intolerance (gluten sensitivity) or coeliac disease feel better on a gluten free diet.
For more information contact Coeliac WA or visit their website www.coeliac.org.au
IMPORTANT NOTE : As coeliac disease is a serious medical condition with lifelong implications, a definitive diagnosis is essential. The gluten free diet is not a trivial undertaking and involves lifestyle changes and learning new skills such as reading and interpreting food labels. It should only be undertaken after the diagnosis of coeliac disease has been properly medically established.
For those patients with autoimmune thyroid disease don't forget to view the Coeliac Australia website for further information that may assist. For example they have a Fact Sheet - Monitoring and follow-up of coeliac disease that mentions screening for associated conditions including Thyroid Function Test (Graves' disease or Hashimotos thyroiditis)
Smart Phone App- GlutenSwitch
Eating Gluten-Free, now as simple as GlutenSwitch. The George Institute for Global Health and Bupa bring you an easy way to help find gluten-free products in the aisles. If you've got a smart phone, simply scan the barcode and it will show you the gluten status of the product - and if available, other gluten- free options. Even better, it shows which brands might be a healthier choice! GlutenSwitch is part of the FoodSwitch app, available free from the AppStore and the Google Play Store. bupa.com.au/foodswitch
SECRET FACEBOOK GROUP
Like to chat with others with a similar thyroid experience? Join THYROID WA secret FB group. https://www.facebook.com/ThyroidWA If you or a family member has thyroid disease, jump on the THYROID WA Facebook page and ask to join the group via MESSAGE. The main purpose is to support others and perhaps swap your thyroid health journey. You need to be a thyroid sufferer.
If you have a technical question you can CONTACT US via the www.thyroidwa.com
THYROID HEALTH AWARENESS TALKS - THYROID WA provide free talks to Community Groups. Bookings are now being taken. So if your community would like to know more about thyroid health then please Contact Us with your request and a Volunteer will get back to you. Remember THYROID WA is operated entirely by Volunteers and we will endeavor to reply in a timely fashion.
Support the organisaton that supports thyroid patients! We need experienced people in the Not-for-profit area who know about the rules and regulations to fill suitable roles. Are you interested in increasing: Self Confidence / Self Esteem / Life Satisfaction / Sense of Accomplishment / Positive View of your life and future goals / Your Knowledge Base on Thyroid Conditions / Supporting your Community.
Education is the key to better health outcomes and providing an informative and comprehensive website, facilitating support enquiries direct to THYROID WA Volunteers (via the CONTACT US on the website) and at a more personal level, providing regular Thyroid Health Awareness Presentations (where attendees could ask questions in a group forum) has been focal part of the success to date for THYROID WA.
As with any volunteer organisation we want to see some new innovative people come into the group and move it to another level. We are starting to get a busy programme of talks and events for 2018 so the interest is there. We would be delighted to talk to anyone that might be interested in helping, there are a range of activities you could do. Volunteers are the mainstay of the support group. Without Volunteer involvement and commitment the support group would not function.
Every member needs to get behind the Volunteers to support and assist them in every way possible. Volunteering can be rewarding, especially when you know your endeavours assist people newly diagnosed or struggling to gain information about their thyroid diagnosis.
Further information see current Volunteer roles
HOSTS required for Coffee Catch up for Thyroid Sufferers -
Many people request "get togethers" for thyroid sufferers, especially on weekends. If you would like to meet up with other thyroid sufferers over a "cuppa" and have a chat about all things thyroid, then CONTACT US via the website and suggest a time and location (generally a coffee shop - with their pre approval). THYROID WA Volunteers will assist you to faciliate this much needed "informal" gathering. THYROID WA encourages you to take part and connect with other thyroid sufferers.
WHY COMMUNITY PRESENTATIONS
Help THYROID WA get the word out into the Community about thyroid health!! Do you belong to a group that would like a guest speaker? THYROID WA provide a guest speaker, free to community groups, to talk about thyroid health. Each talk is tailored to the audience, so whether your group would like a talk for 45minutes or 1 hour please CONTACT US to discuss further.
Want to know more about the role of Naturopathy and thyroid health?
So you missed another presentation!!! THYROID WA presented guest speaker Naturopath Tara Ross to talk about ways that you can improve your thyroid health, holistically. Tara has presented many joint talks with THYROID WA over the last few years and has received an excellent response from attendees. Entitled :Want to know more about the role of Naturopathy and thyroid health?
During this seminar Tars talked about how naturopathic principles, as well as healthy diet and lifestyle choices, can help to:
- treat autoimmunity - the cause of the most common form of low thyroid function - Hashimoto's thyroiditis
- improve your thyroid health holistically by supporting your liver, digestive tract, adrenal glands and reproductive system
- reduce debilitating thyroid symptoms such as weight gain, fatigue and brain fog so you can finally feel well
Tara Ross is a naturopath and owner of Harmony Natural Medicine Clinic in Spearwood. Tara has had 11 years clinical experience and specialises in treating thyroid conditions, with a particular interest in Hashimoto's thyroiditis. You can find out more about how Tara can help you treat your thyroid condition - www.harmonynmc.com/thyroidbalance
New RESOURCES link - www.edmcasereports.com
Endocrinology, Diabetes & Metabolism Case Reports, is a new online resource that publishes and links together case reports on common and rare conditions in all areas of clinical endocrinology, diabetes and metabolism.
This venture is a collaboration between Bioscientifica www.bioscientifica.com and several leading national and international societies around the world; all working together with the aim to further medical education and clinical practice. This is of particular importance in the field which encompasses many rare diseases that are often difficult to conduct clinical studies on. For this reason, case report literature is immeasurably beneficial, both for treatment and education. You can read about the experiences of others living with thyroid conditions and may be able to help other patients living with these disorders by encouraging their doctors to publish their own case reports. As this freely accessible database grows, it further enables practitioners to learn from each others' experiences.
Buying medicines and medical devices over the Internet
Products available on international websites are not regulated by the Therapeutic Goods Administration (TGA). If care is not taken, consumers may inadvertently break the law, waste their money or risk their health. Read the full extract from the Australian Government Department of Health Therapeutic Goods Administration (TGA) article on buying medicines and medical devices over the internet.
Rare Cancer Australia
Rare Cancers Australia, spear-headed by Kate and Richard Vines, states that only 12.6% of research funding is spent on rare and less common cancers and yet, or perhaps because of that, these cancers account for 45% of cancer deaths. View the interview with ABC Breakfast TV for more information http://www.abc.net.au/news/2014-03-17/rare-cancers-australia-co-founder-richard-vines-joins-abc-news/5324804
Give Now Donations for THYROID WA
THYROID WA SUPPPORT GROUP INC. is urging its supporters to raise much needed funds. If you are planning an event that could raise the profile of thyroid disease, while at the same time raise money, any donations can be easily given via the THYROID WA Give Now account.
Our Community Foundation, which runs the GiveNow.com.au - giving service, providing access to commission-free online donations for community groups. Both GiveNow Week and GiveNow.com.au are supported by Westpac. GiveNow Director Kylie Cirak said THYROID WA SUPPPORT GROUP INC. was one of around 2500 great causes listed on GiveNow.com.au that could do with more local community support in the year ahead. To DONATE click https://www.givenow.com.au/thyroidwa
IDEAS - Are you getting together with friends for a pre - Christmas event and normally exchange "useless token gifts"? This year rather than the swap, suggest collecting a few dollars and donate them to THYROID WA SUPPPORT GROUP INC via http://www.givenow.com.au/thyroidwa
Global shortage of Neo-Mercazole (carbimazole)?
Carbimazole is often prescribed to people with an overactive thyroid (hyperthyroidism). For more information see the latest update on the Therapeutic Goods Association website https://www.tga.gov.au/media-release/shortage-neo-mercazole-carbimazole
Rural In Reach - Womens Health and Family Services
THYROID WA was able to "teleconference" to an audience at mulitple regional Communuity Resource Centres. The PPT presentation is a great format to communicate remotely. The engagement by the audience was very smooth and the response from the participants was excellent. THYROID WA hope to provide another Thyroid Health Awareness talk to the Rural In Reach program.